Hi, I am Alex. Vitiligo showed up on my knees when I was six and spread to my ankles, elbows, hands, and lower back. Places I can cover up if I want to, but I try not too let Vitiligo choose my clothes. I don’t remember being diagnosed with Vitiligo; it has always just been there - it is part of who I am.
I have been at the same small school since first grade, so all of my friends already know what Vitiligo is, but I still get asked sometimes. This year in my class I help out the third grade class for community service and someone will always ask, "What’s that on your knees?" and I tell them I am a vampire. I have different answers for different people but I think it’s funniest when little kids ask because they believe me. But often kids are not as rude as adults who sometimes stare. I just smile back at them and try and make them feel bad for staring. I guess what I am trying to say is don’t let Vitiligo embarrass you.
I went to an AVRF conference for the first time last year. Vitiligo has never bothered me before but it was still cool to meet other kids with Vitiligo (my cousin has it, too). I also learned a lot about treatments for Vitiligo, but I still don’t want a treatment and probably would refuse a cure if one were offered to me.