Children's Corner

The AVRF would like to extend our appreciation to the children below for helping us create these inspiring pages for our website. Thank you all for showing the entire vitiligo community that awareness and education are the first steps to acceptance and for speaking to the world about your life's experiences in living with vitiligo.

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Katherine

Hi, my name is Katherine. I have Vitiligo on my knee, eyelids, on my abdomen and on my neck.  My parents noticed it when I was in Kindergarten.

People ask me “Are you wearing eye shadow?” a LOT!  I tell them “No, it is just Vitiligo; Vitiligo is a skin disorder and it is not contagious.”  It kind of gets annoying but I have gotten used to it.  A lot of the time I forget that I have Vitiligo.

Even though I have Vitiligo I still play soccer, do swim team and spend a lot of time with my friends.  My friends don’t treat me any differently than they would if I didn’t have Vitiligo.  The only bad thing about having Vitiligo is that I have to put on lots of sunscreen, especially on my eyelids or they turn bright pink.

Katherine

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Kylee

My name is Kylee Grace.  I love gymnastics and reading books.  Sometimes my mom comes to class the first day of school to explain to the other kids about my white spots on my body.  This year, she did not have to come.  I explained “my Vitiligo” to my friends this year!
I have white spots all over my body but I learned last summer that I was not alone.  I am not different – I am unique.  Spending time with my new friends at the AVRF conference in Florida showed me that there are many people like me, even kids my age.  I even met my new friends, Gwen and Kelly.  Now I don’t feel bad or shy about my body.  It doesn’t even bother me anymore.
My Mom and Dad get really happy when I tell them this, but now I know that every person is special – I am special because of my Vitiligo.  And I can’t wait until I can take my sisters on the Florida trip next year to meet my friends.
Thank you AVRF for helpingme in this journey of Embracing our Diversity (that’s my Mom’s words).

 

 

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Paula

Hi, I’m Paula.  I have had Vitiligo for three years.  My first spot appeared on my forehead.  I am dark skinned so the spots are very noticeable.  The worse year ever was when I was 6 years old and in the 1st grade and not able to understand why this happened.  I was very active in cheerleading, dance, and Girl Scouts, you know, girl stuff.  Kids stared and teased me and made fun of me in school.  Almost everywhere I went people were asking me or my Mom what happened to me.  It made me feel sad inside, but I give thanks to God and my family who support me and love me unconditionally.  My mother always tells me to remember that you are loved; God made you special and unique and to be proud of whom I am in my skin; and to try not to worry about what people say, some people can be cruel, just pray and let God handle it. 

God sent an angel to us, Ms. Stella, and the AVRF.  I met Ms. Stella when I was seven years old when I went to my first Vitiligo conference in Tampa.  I met kids just like me.  I was so happy.  I had the best time of my life and it changed me forever.  Ms Stella has made a difference for us with all her time and hard work and the special things she does with the AVRF have shown me I’m not alone.  Thank you so much.

xoxo Paula

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Ava

Hello! My name is Ava,  I have a twin brother and his name is Andrew. I like school and I love to dance…all types of dance, ballet, jazz, tap, and my favorite is Hip Hop. I also do gymnastics. This year I became a Girl Scout. I really love the Girl Scouts because I get to have fun and help others.

Last Spring, I got Vitiligo on my face. When I first got it, I was very upset but now I'm getting used to it. Some of my friends would ask me why certain parts of my face were white so I told them. My mother told me that not everyone knows everything and when people ask questions, it's a good thing because that means they care to know. So I tell my friends it’s Vitiligo; and since a lot of people don't usually know what that is, I then explain what Vitiligo is.

I really enjoy fundraising. I do it for different kinds of things, but now I want to be a part of helping other kids with their Vitiligo. It makes me feel really good. Oh, yeah, and when I grow up I would like to be a dermatologist!!

Your friend,
Ava

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Aubreana

Hi, my name is Aubreana.

I developed Vitiligo when I was in Kindergarten. It started on my foot, leg, and also my face. My parents and I did not know what it was, so we went to a skin doctor when I was five. He took my picture, and he did some research. After, he gave my mom some cream. She kept trying it and trying it; then we stopped using it because it was not working. So we went to another doctor when I was seven and he said there was nothing he could do. So my mom did not go back to that doctor. When I would go to school, everybody would stare at me and ask me what that was on my face. I got embarrassed, but I noticed a little later it made me unique and I knew I would probably have it as long as I live and it didn't matter. It was a gift from God. Now I know I can shine with or without Vitiligo.

Thank you, God!

Aubreana